Today started right around midnight. ;) Kayla woke up crying because her accessed port hurt. There wasn't much I could but try to get her to go back to sleep. Penny, the nurse, did explain to me how to take it out if she changed her mind, but I wasn't sure I felt comfortable doing that yet. So, I just kept trying to calm her down and get her to sleep. She kept crying on and off (mostly on) for the next 3 1/2 hours. Ugh. I think 3:30AM was the last time I looked at the clock and I hadn't really even slept yet for the night. I was already exhausted from the past week of crazy busy-ness and 4th of July festivities, treatment yesterday, and knowing that we have to leave by 5:45AM this morning. So, after almost 2 hours of sleep, I got up and ready to go.
Kayla was much better when she got up and didn't complain about her port hurting. She didn't cry about being hungry or thirsty at all. She did ask me on the way over if this was her last trip to the hospital. I had to tell her that no, we would do this again every three months. That got me thinking. . . three months from now is my due date. That will be interesting. :) For her next MRI, I will either have a brand new baby (if she comes a little early), or I will be just about to have a baby.
When we got to the hospital we went in and got registered. I had explained to Kayla that this would be just like her dental surgery a month ago. She seemed okay with everything. We went down the the MRI part of the hospital and talked to a super nice nurse for awhile and the anesthesiologist.
Side note: As I was thinking through everything last night, I realized that Kayla would need another dose of zofran this morning, but she couldn't eat or drink anything. . . . so I would not be able to give it to her in OJ. I called the doctor at about 8:30PM and thankfully, Dr. Hanson was the one on call. I told him the situation and he said that he would leave orders for zofran with the nurses and for me to call them at 8AM when they got to work and they could figure out how to get it to the hospital to us. I felt pretty good about this. It is usually around 8AM when she starts to feel nauseous, so I thought she might be okay up until the MRI.
So, back to waiting for the MRI: I told the nurse that she had had chemo yesterday and usually gets nauseous in the mornings and explained about the zofran situation. She was so nice and told me that they had zofran right there and that she'd just get the anesthesiologist to approve it and they could give it to her right away. I was glad that it worked out that way because it was only 7AM and Kayla told me that she was starting to feel sick. So, we got zofran in her through her port and she decided that she was tired (I can't imagine why, ha ha) and lay down on the bed to rest. The MRI wouldn't start until 8AM, so we had an hour to wait. I talked to the nurse quite a bit. She was so nice and interested in Kayla's condition and how everything came about. I told her that it would be VERY good if I were there when Kayla woke up from the anesthesia and she told me that she would be sure to work that out.
Kayla fell asleep for most of the conversation. . .
Kayla also got an anti-anxiety drug to help her be calm for going into the MRI. When it was time to go, she insisted on walking, even though the nurse anesthetist said she probably wouldn't be able to with the medication. But, no, she walked only holding my hand. When we got to the door of the MRI room, I couldn't go in. I was a little nervous about how she would handle that. But, she did fine. She refused to hold anyone's hand and walked alone to the bed in the room. The nurse anesthetist put her up on the bed and got her all settled with her pillow pet and blanket. She lay down and pushed the mask away when he tried to put it on to gas her to sleep. I told them several times already to please use the port, she doesn't like masks. So, he gave her the sedation through her port. She was out pretty quickly. This experience was completely different from her last MRI. . . she did awesome.
I then went down to the surgery waiting room (which I am getting pretty used to) until Kayla was done. They came and got me about 20 minutes before she went into the recovery room so I could be there when she got there and when she woke up (yes, I really liked that nurse who arranged everything). They wheeled her in on the bed and she slept for several more minutes until she woke up. Kayla was very calm and did great waking up. After a little while, she sat on the chair with me and ate a Popsicle and watched some cartoons until they de-accessed her port and we left.
One thing that I wasn't too excited about was after I told the anesthesiologist that she was nauseous he decided to put a breathing tube in her during the MRI in case she threw up. I knew she'd be fine once she god the zofran and I knew that a breathing tube was probably going to give her a sore throat, cough, and may result in the same kind of night we had after her dental surgery when she woke up at 2:30AM with a fever, cough and sore throat and we were debating whether or not to take her to the ER. I will be praying hard for a good night tonight! I really could use some sleep!
For the rest of today, Kayla has been great. She didn't even want to lie down and rest all afternoon. We went with my mom out to the orchard so she could get some cherries to take home and then Bryson took all the kids on some errands so I could have a little quiet time. Kayla kept up with it all and was normal and energetic tonight before bed.
Now, we get to have a weekend before we start another crazy week next week! Lots of doctors appointments. . .
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