August 9th - Week 21

Last Thursday's treatment went really well.  Kayla did great with getting accessed and pretty good with Marnie when she was examined.  The nurse from last week was not there, thankfully, and the nurse that came in with Marnie was one that we know well and she had been the one to access Kayla's port that day.  

One thing that Marnie brought up was that Kayla's ankles were starting to get a little weaker (caused by the vincristine) and that we should start to think about taking her to physical therapy.  My first thought was great. . . another weekly appointment.  I do want to do the best thing for her, but between weekly chemo, my doctor's appointments which are now two weeks apart and soon to be every week, and anything else that comes up between the other three kids (soon to be four other) . . . that's a lot of time spent at doctor's appointments. 

Marnie did say that she knows things are busy for me right now and to just start thinking about starting whenever we feel ready and able.  Hopefully, that time will come when I feel ready and able! ;)

So, that day was a super busy day in the chemo suite.  There happened to be a little 5 year-old girl there who was going to be there all day and also liked our favorite spot.  Luckily, we got along really well and kind of shared the area.  She was so cute and Kayla soon became comfortable around her.  They colored together, ate lunch together, watched Snow White together, and we all played Candyland.  Her mom and grandma were there, too and I was able to talk to them quite a bit.  They were super nice and we shared our experiences with everything that has happened with our little girls.  I enjoyed the day very much.  When we left, I asked Kayla if she had fun and she very adamantly said, "Yes!"  I hope we will meet again with our new friends.   

Kayla did have a few minutes of music time with Stephanie on the bed at the beginning when she was still wanting some of her own space.  Here's a silly picture: 

It has been harder for me to get Kayla to drink her "orange juice" (with zofran) when we get home from the clinic.  She wasn't feeling good by dinner time and finally before she went to bed she finished drinking it.  She immediately felt better.  The next morning, though, she threw up several times and didn't feel good much of the time because she would not drink her OJ.  Sigh.  I hope this doesn't get harder or we might have to start staying longer again to get her second dose of zofran through her IV.