September 13th - Week 26

We had another early morning today of getting Nathan and Lily onto the bus and then getting in the car to go to the clinic to be there by 8:15AM.  We got there, Kayla got accessed and checked in with no problem and  then we met with Marnie.  I told her about our experience last Friday when it took Kayla all day to drink her juice with zofran.  Marnie mentioned (like she has before) about the possibility of using a zofran patch.  Unfortunately, Kayla is too little for it, but Marnie said that she would talk to the pharmacist about possibly adjusting the dose by folding the patch over and taping it down.  Anyway, we'll see.  That would be very nice. . .

Kayla and I were in for a LONG day.  We had an hour of fluids, over an hour of chemo, two hours of post fluids and then an hour of pentamadine.  Luckily we secured our favorite spot in the chemo suite since we were there so early.  We colored, played games, watched part of Toy Story 3, did some preschool activities, and ate lunch.  It was a super nice day, so we did a little bit outside on the patio area-some of the preschool stuff and we ate lunch outside.

When Miss Stephanie came to ask Kayla if she wanted to have some music time, Kayla said no.  I think it was because Stephanie had another girl with her, kind of shadowing her.  I am pretty sure that is why Kayla said no.  After lunch, though, and watching a couple of other kids do music, she changed her mind.  In fact, Stephanie was busy with another child, but her helper, Irene, said she could come and do music with Kayla and Kayla said okay.  Wow.

So, Kayla and Irene played songs on the guitar and xylophone.  Kayla didn't even want me outside with them, so I walked around the hallway a little bit tried to be comfortable.

After they were done with music, Kayla wanted to do craft, so we tracked down Miss Jenn and got some paper dolls to color and cut out.  A little bit later, Jenn came back and Kayla went outside with her to draw with sidewalk chalk and blow bubbles.  We were close to the end and I was getting kind of tired, so I took that opportunity to lie down on the bed and rest for a few minutes before the drive home.

And we were done with another week.

Now, it took all night to get Kayla to drink half of her tiny cup of grape juice that I put zofran in.  She was so tired that she finally just fell asleep.  I knew she was not going to make it until morning before she started throwing up.  And I was right.  At 2:30AM, Kayla came in our bedroom needing to throw up.  Now, for as much as she throws up, I have to say that she ALWAYS makes it to the toilet.  I am very blessed that way. :)

Well, I wasn't quite sure what to give Kayla.  I asked her if she wanted grape juice. . . but then I didn't really want to sit with her all night trying to get her to drink it.  So, I told her that I had a little pill, kind of like a smartie that would help her to feel better and not throw up.  She perked up at the mention of the word "Smartie."  She said, "I like smarties!"  I told her that I wasn't sure what it tasted like, but I thought it was a little minty.  She said, "I like mint!"  Okay, great!  So, I went downstairs and got one of the zofran pills, cut it in half and brought it up to her.  She had some water, so I told her to put the pill in her mouth and then drink some water and it would disappear.  Well, she did it!  But then she said it was gross and took it out of her mouth.  It was ALMOST gone.  I then talked her into doing that one more time.  AND SHE DID!  She put it back in her mouth and took a drink of water and told me that it was gone!  YAY!!  I was so excited.  Now we could both sleep for the rest of the night. :)  She did great.  The next morning, I told her that she might start to feel sick again and that she might need to take the little pill again.  And she said. . . OKAY!  (Not excited like that, but more like . . . okay. . . if I have to. . .)  I was just excited that she was willing to do it again.  This may be a HUGE breakthrough. . . if she keeps it up.  Kayla was actually fine fore the whole day and never needed anything else.

And just to keep you updated.  I had gone to my doctor the day before.  I was just over 36 weeks, dialated to almost a 3 and 80 percent effaced.  That was more than I was expecting.  If we can make it through these next two weeks of chemo, then I'll be ready for the baby to come so I can have her two off weeks to recover before we start back into Kayla's next round of chemo.