We met with Dr. Chang, who we haven't met with since Kayla was in the hospital and initially diagnosed. She looked through Kayla's chart and asked different questions. She also commented on how well Kayla looks and how much she has grown since that initial hospitalization. Dr. Chang asked me if we liked coming in on all her off weeks. Uh. . . I just do what I'm told! :) She told me that since Kayla has always done well on her first week off that we could probably just come in on the second off week. I guess we'll see. It always depends on who we are meeting with that week before. But, she said that unless Kayla had a fever or significant bruising due to low platelets, we didn't need to come in next week! Wow, our first true week off in 10 1/2 months! In some ways, I like going in every week, because I hold my breath from week to week that Kayla won't get sick and that everyone in the family will stay healthy. Going two weeks seems almost harder because it will be longer in between doctor visits where someone will reaffirm to me that she is still healthy and doing great.
Dr. Chang also asked me if Kayla had had a baseline hearing test. I told her no, so she ordered the test. It has been mentioned a few times over the past few months, but no one ever said to go do one for sure. They like to get a hearing test at the beginning of treatment and at the end. This way they can check and make sure the chemo has not affected any hearing capabilities. Even though we are two-thirds of the way through, we'll still get the test done now and then at the end.
So, we got to go into the chemo suite for a little while. Kayla got Pentamidine (the antibiotic). It took about an hour. So, she and Benson watched a little Monster's Inc. and did some watercolor painting.
And we got home right about lunch time. Another week down!
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