April 30th - Week 50

Last Tuesday, we headed out a little earlier than we have been lately.  We dropped Benson off at a friend's house at  8:30 AM and  headed to the clinic.

Kayla got checked in, accessed and we settled into our regular spot in the chemo suite until Dr. Hansen was ready to meet with us.  Sadie's legs, arms or cheeks got squeezed by just about everyone we passed. :)  No one can resist her chubbiness.  We saw Marnie and she was excited about Kayla's news.  She said that in the literature, it says that tumors like hers can go completely away. . . but that no one had ever seen it.  I told her that we are glad to be the exception.  We seem to beat all the odds. :)  

It was nice to meet with Dr. Hansen.  We got Kayla's immunization exemption form filled out for kindergarten. She didn't get her 4-year-old shots before all this happened and she can't get any until at least 6 months after treatment is done.  Dr. Hansen was very pleased with Kayla's results from the last MRI and I asked him if anything interesting was discussed at the Brain Tumor Conference and if this meant or changed anything about the future.  It didn't change anything.  He said that she would finish out her treatments, she is very close to being done, now (wow!).  He also said that we will celebrate, be happy, and hope that the tumor is gone forever, but they will continue to scan her and check  her like it will come back.  I guess that is playing it safe.  

Kayla, Sadie and I spent the rest of the day in the chemo suite watching movies, reading, eating lunch and doing projects.  I was thinking that we'd be done earlier since we started earlier, but things still take time and it was 3 PM before we left for home.  

The absolute nicest thing lately has been Kayla's new anti-nausea medication.  I keep reminding myself what a blessing that has been!  No more fights over taking zofran!  My stress level over that has completely disappeared.  And, Kayla has hardly even felt sick the entire day after.  She has energy and we can go out and do things.  Before, we spent the entire day after chemo with her sick on the couch or with little energy and me not getting much done.  It was taking up two days out of each week--which is a lot.  So, I am so grateful for how good she feels and how the chemo doesn't seem to even phase her.