So, on Monday at about 5PM, I realized that I hadn't gotten my usual reminder call from the clinic. I started thinking about our appointment for Tuesday and also realized that the time had been scheduled several weeks ago as a tentative time. Hmmm. Tuesday morning, I called the clinic right when they opened at 8AM and asked about Kayla's appointment that day. Well, she was not on the schedule, so I was told that it would get worked out and a nurse would call me back. I had places lined up for Nathan and Benson to go, Lily wanted to come with us. We got all ready to go and waited for the call. Originally, we were supposed to be there at 9:30AM, but when the nurse called me back, she said that they were going to get Kayla in at 10:30AM. So, we hung out a little longer and then took off.
Everything went well with getting checked in and accessed. Lily had fun being out in the lobby and playing with Miss Jenn. A few nurses commented to me about how glad they are when parents are on top of things. Kayla just kind of slipped by this week. I am just so in the habit of going in on Tuesday that I wouldn't know what else to do. ;)
We got to meet with Dr. Hansen, which is always so nice. BUT, Kayla just BARELY missed her counts to be able to start the LAST cycle of chemo. Bummer. Her platelets were 95 and they need to be 100. Ugh. SO CLOSE. I did get to talk to Dr. Hansen and nurse Heather for awhile though and ask them some questions. He clarified for me that once Kayla is done, she will get the IV Pentamadine for 3 months after (not 6 like I thought we were doing). Once it has been 3 months after, then she will have her port taken out. This was a relief to me to know that we wouldn't have to 3 more doses of Pentamadine with no port. That would mean an IV in her arm and because the Pentamadine is so thick, it would have to be diluted and probably take about 4 hours to get instead of 1.
I also mentioned to Dr. Hansen that we are possibly planning a trip to "the happiest place on earth" (we haven't told the kids yet) and wondered if he thought it would be okay to do so soon after Kayla would (hopefully) be done. He was totally okay with it. He said that people had gone during chemo, but he wasn't as comfortable with that. Heather also told me that we would qualify for the Make A Wish program. She said she would have another lady call me and get me an application. Wow. That would be Awesome.
And then we were off to home. On the way, I asked the girls if they could go anywhere in the world, where would they pick. Lily was quick to say Hawaii and practically planned out the whole trip right then. :) Kayla said, "Walla Walla, Washington." Sweet girl. That is where grandpa and grandma live. We are still keeping the whole thing a secret from the kiddos right now, so if you know them, please don't say anything.
And, we'll try again next week!
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