Friday, April 27, 2012

April 26th - Treatment #6

Yesterday's trip to the clinic was actually a short one.  It was a very nice break!  What was soooo nice about it was we didn't have to be there until 10AM.  This was very helpful because with getting the kids off on the bus and having everything ready to go, I still had time to get Benson to take his antibiotics and do a nebulizer treatment before we had to leave.

Kayla did very well with putting her "sleepy cream" on.  It was the first time that Bryson didn't have to hold her down.  She let me do it all by myself and just held still.  This was definite progress.  She still doesn't like it because it is cold, but that is one less fight we are dealing with now. :)

We dropped Benson off at a friend's house and headed to the MSTI clinic.  Kayla did so well with her port access.  She wasn't happy about it, but she didn't even cry.  Just a little whimper was all.  Nice....fight #2 is getting better.

They absolutely HAD to get her height, though, since she has never let the nurse get it before.  Kayla wanted me to hold her, but that doesn't work with height like it does with weight.  ;)  So, after about 10 minutes of trying to convince her to stand straight against the wall (it's really not THAT difficult) we took her into an exam room, held her down on the bed and they marked her feet and head like they do to measure babies.

Then, Kayla screamed the amazingly ear-piercing scream that she has that literally rattles my ear drum (and everyone else's within a 1/2 mile radius).

And then we were good. :)  We waited in the room to talk to Marnie, the NP. I asked her about kiddie pools.  With it being so hot, the kids have wanted to go swimming or run through the sprinklers.  We can't use the regular sprinklers that water our grass because it's irrigation water.  But, we can use a sprinkler on a hose from the house.  I did want to get a little pool to put in the yard, but Marnie said that anything with standing warm water was a breeding ground for growing bacteria and probably wasn't a good idea.  Bummer.

Kayla did good getting examined and then we went into the chemo suite.  She was only getting the vincristine, so we were only there for about a half hour.  She didn't need any extra fluids and the vincristine only takes about 10 minutes.  So, then we were done and ready to go home!

It was nice to have another short day.  Next week, and most weeks will be the all day visits, but every once in a while we will get a break.  I haven't looked closely at the schedule since she started, but I have a sheet with all 60 weeks mapped out.  I'll have to check that out again.

2 comments:

  1. Yeah that some of the fights are getting easier! She will be a pro by the end of all of this. Steve has crohn's disease and was diagnosed young...he used to place his own NG tube (the one that goes up your nose and down to your stomach) as a kid! He said it was better then having someone else do it. We have more strength than we know. I will continue to pray for you.

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  2. Way to go Kayla! I'm glad she's making progress already.

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