Test Results

I got a call from someone at the hospital today, I think she said she was from the Genetics something or other. . . anyway, she had Kayla's test results for the Neurofibromatosis.  They sent blood work off when we were in the hospital and told us that it would be about six weeks to get results.

So, the test came back negative!  That is good for now.  But, we have been told a few different times that even if the test comes back negative, that doesn't necessarily mean that she doesn't have it.  She just may be too young.  As she gets older, she still may develop some of the other symptoms of the condition (brown spots on the skin, small tumors or bumps under her skin, freckles under her armpits, and more.

The main reason the doctors think she has this condition is because of the type of tumor that she has.  Optic gliomas are very commonly found in people with neurofibromatosis.  But so far, that is the only symptom that she has and they usually have to have at least two symptoms of the condition for it to be diagnosed.

Anyway, for now, we are good and just focusing on her chemo treatments and keeping her healthy despite the coughs and sicknesses that are going around the rest of our kiddos!  So far so good.

And also, another thing I like to keep updated is that she has not lost any of her hair yet.  Knock on wood!