May 3rd - Treatment #7

Treatment #7 started out at 6:30AM, taking Kayla's bandaid off from the week before (over her port) and putting the sleepy cream and Glad cling wrap.  This was the first morning where she did not protest.  I was able to get it on without Bryson needing to to hold her down.  That is improvement!  

We got Nathan and Lily off to school, everything loaded up and dropped Benson off at a friend's house and went to the clinic.  They want us there by 8:15AM, but no matter how hard we try, we cannot get there before 8:30AM.  Maybe next week!  

When we arrived, the nurse came right out to get us and took us back to access her port.  There were two other nurses in the room blowing bubbles and talking to her and she did not even whimper this time when they stuck the needle in.  Hooray!  

I almost thought she would stand on the scale alone to get her weight, but she still wanted me to hold her.  

They hooked her up to IV fluids right away and gave her the first dose of zofran before we met with Marnie, the nurse practitioner.  She usually examines Kayla on my lap, but this time, we had her sit on the table, with me next to her.  She did a little kicking and screaming, but hopefully we will move towards her being able to sit on the table/bed thing in the near future without a problem.

Jenn, the Child Life person who always has fun projects for Kayla, was gone on Thursday, but she left a whole tub of fun projects.  We colored with markers on a big poster, colored a purse, made a picture frame, had a snack, ate lunch, and then afterwards went over to the bed and watched a movie.  

We actually got done by 2PM, which was early for us on our long days!  She was able to get her second dose of zofran and then they de-accessed her and we left.  We even got home before Nathan and Lily got off the bus (which they weren't happy about. . . they like going to a friend's house right after school. :)  

It was also nice to get home earlier because it was Benson's birthday!  Luckily, he doesn't know any better yet.  I'll post a little about his birthday next.  

Here's Kayla in the waiting room right after we arrived.  She insisted on wearing her fairy wings and wand that some friend's gave her.  Everyone called her the fairy princess. :)

Here she is working on her picture frame.  

One more week down!