Today was Kayla's weekly chemo. I dropped off Nathan, Lily and Benson at yet another friends' house (THANK YOU!) and drove to Boise. We had a pretty typical day, checking in, weight, blood pressure, temperature, and then down to the lab for accessing her port. Kayla did great sniffing her chapstick and sucking her Dum Dum sucker to mask the smell and taste of the whole process.
We talked to Marnie, and Kayla did great taking deep breaths as she was examined. There was nothing too exciting to talk about. Kayla looks great and is doing great.
So, we were off to the chemo suite and on our way through a very long day. She had an hour of fluids, then just the carboplatin today (which takes an hour), two hours of post hydration and then an hour of pentamidine (the antibiotic she gets once a month since she won't take it orally).
We colored, watched Snow White, did a little music with Miss Stephanie, ate lunch, colored, watched the rest of Snow White, played games, and colored. I did finally lie down with her on the bed and rest a little bit, too. For just laying around, it's an exhausting day!
She was very tired when we left and slept all the way home. I gave her zofran in a little bit of root beer, hoping she would drink that. But, even after asking for root beer, she didn't want to drink any. She then asked for orange juice, so I got orange juice with zofran ready for her and she drank a little of that, but it was a huge ordeal to get her to drink the whole thing. After an hour and a half, she had finally drunk all of her OJ (which was really a very small amount). She'll need some more in the morning, so I hope it doesn't take all day to drink like it has the past couple of Fridays. Whenever I ask Kayla if she'd rather drink her OJ or throw up, she chooses throw up. That doesn't help much.
The next two weeks are short weeks, though! Just blood count checks. Yay!
Jamie, you're a trouper and I wish I lived closer so I could help more. Glad to hear that the treatments are going well!
ReplyDeleteHi,
ReplyDeleteI ran across your blog from a Pinterest recipe. Funny how one thing leads to another! Your experiences bring back memories for me of caring for my young adult son with a brain tumor. Chemo, zofran, MRIs, weekly appointments, physical therapy and more. We also have had friends with neurofibromatosis. Life gets so busy when you're dealing with tumors of any kind. And to be pregnant on top of it all! You must be a "super-woman"!! I know, though, from our experiences that it often comes down to putting one foot in front of the other on a daily basis. I will keep you all in my prayers and thoughts as the days go by.
Trueda Gooding
(www.caringbridge.org/visit/joshgooding)