Today just about takes the cake for the longest day. Kayla and I left home, dropped Benson off at a friend's, and got on the road by 9AM. We made some Peppermint Sugar Body Scrub (if you'd like to make it, I posted the recipe here on my self-reliance blog last year) for all of the nurses at the clinic, so my hands were very full walking from the bottom of the parking garage (where Kayla insists we park) to the clinic. A baby carseat (a very heavy one. . . Sadie is a big girl!), big bag of stuff for the day and a box of half pint jars full of the body scrub. I'm not going to feel too bad for not getting my workout in for the day. ;)
Kayla got accessed, checked in, and hallelujah! - we got our usual spot! A bed tucked back in the corner and access to the little kid table. We unloaded our stuff there and then went to meet with Marnie. Kayla's counts were all good and we didn't really have much to talk about. She's doing great. Marnie did mention how great Kayla's hair looks and I constantly count that blessing. With the chemo she is receiving it is very common to loose your hair or at least have it thin out a lot and Kayla has not even had any thinning. Hooray for strong hair follicles!
We were in for a very long day. She got her regular chemo: 1 hour pre-hydradration, 1 1/2 hours chemo, 2 hours post hydration. Plus it was time for pentamidine (1 hour). THEN, we had to go over to the hospital for an EKG.
Kayla did some music with Miss Stephanie and Miss Irene (I think Irene is training to take over, or at least sub for Stephanie when Stephanie has her baby in a few months--and Kayla likes Irene, too). Kayla got Stephanie to play her favorite Christmas song on the guitar. You'll never guess what it is. No one ever does. It is the song that goes, "Last Christmas, I gave you my heart but the very next day, you gave it away. . ." It is really funny that it is her favorite song. She and Lily listen to it over and over and over. Even Benson sings along with it now!
Kayla worked on a few projects where I didn't get pictures. She cut out Christmas light bulbs on colored paper - one for each letter of her name - and wrote her name on them with glitter glue and stapled them to a piece of yarn. Miss Jenn helped her with that project.
Kayla was also given a beautiful red Christmas dress. There was a little girl that used to get treatment at the clinic who loved red dresses. So, one year, her family donated red dresses for the little girls at clinic. Now it has become a tradition each Christmas to give the girls red dresses. Many different people donate them. It is a beautiful dress. I will try to post a picture of Kayla wearing it, soon.
We watched Snow White, ate lunch, did some coloring, walked laps around the hallway, and visited with the nurses there. It was a nice day, but just very long. She didn't get done until 4:45PM. Then we walked over to the hospital for the EKG. Luckily, it didn't take very long. We got done in time to hit all of the rush-hour traffic and made it home a little after 6PM.
By that time, Kayla was over due for more Zofran. She was very tired, though, which means she was very unreasonable, too. Bryson helped me get her to take some, but then she ended up throwing up right afterwards. At the same time, Benson was crying because he had a poopy diaper and Sadie was crying because she was hungry and Bryson needed to leave for a meeting. Let's just say I was glad to have all the kids in bed by 8PM so I could have some quiet time during which I enjoyed talking to my mom on the phone.
Good night!
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