Today was week four in Kayla's latest chemo cycle. I can't remember right now how many more cycles she has, but it's four weeks of chemo, two weeks off. What great timing for her two weeks off to be Christmas and New Years. Yay! She'll still have to go in to the clinic, but there will be no fights trying to get her to take zofran. :)
We had an early morning appointment today. Kayla, Sadie and I were out the door by 7:30AM. I left Benson asleep and Bryson took him to a friend's house once he woke up (who even let him come in underwear. . . potty training has been a little difficult to keep consistent with, but he is doing great). Thanks! We got to the clinic and Kayla got checked in, accessed and we met with Marnie.
The only thing I asked Marnie about was the results of Kayla's EKG. Marnie told me that she had seen them and they looked fine, but wanted to talk to Dr. Hansen first. Kayla's ankles are still fairly weak, from the vincristine, but she can still kind of walk on her heels. We have been slacking on her physical therapy exercises . . I guess we need to do better at that. I normally don't worry too much because she is so active, but with the weather getting colder, we are not quite as active. Other than that, Kayla looks great.
In the chemo suite, Kayla watched a movie that we brought for a few minutes. Then Miss Jenn brought her a project to do. She loves projects. :) Kayla colored a Christmas tree and then had some paints to put lights and ornaments on the tree. When she was done with that, Miss Stephanie and Miss Irene came and did music with her. She wanted to stay on the bed to do it today, instead of the little table. I got out of their way and Kayla had a lot of fun singing and making up silly songs while playing all of the fun instruments.
Marnie called nurse Penny's phone in the chemo suite and asked to talk to me. She had talked to Dr. Hansen about the EKG results and wanted to follow up with me. Marnie told me that the EKG looked good and normal. So, there was no side affect from giving the zofran and pentamadine together. My one question I will try to remember to ask next week (and we get to see Dr. Hansen then) if this indicates that each time she gets zofran and pentamadine there will be no risk of heart complications, or if each time there will still be a risk.
After music time, Kayla's lunch came, so we ate. I put her movie back on and I think she fell asleep, or almost did. I was able to have a short conversation with my amazing sister-in-law who just delivered twin girls on her bathroom floor a few days ago. They didn't have time to get to the hospital! Crazy story. :)
While we were there, Miss Jenn brought in a present for Kayla. Kayla was busy with music time, so she didn't see what it was. It is a little pig stuffed animal from Scentsy that you can put a little smelly thing inside. It is really cute. Since she didn't see it, I am going to wrap it and put it under the tree for her for Christmas.
Miss Jenn (we just love her) came and took Kayla out to the lobby where they had a big wagon full of stuff people had donated. Kayla filled a stocking with presents for me! Wow! She brought it back to me and let me open it. There was a red kitchen towel , a pink pen, a purple pencil, a little book of activities for kids, a little family plaque, and a gift card for St. Luke's food places/gift shop. Sometimes I feel like we get super spoiled there. It really makes me want to donate things to them. We will definitely be doing that in the future.
Today Kayla only got carboplatin, so between that and starting so early, the day seemed to be shorter. Plus, comparing it to last weeks marathon day, it seemed really short. :) We were done just after 1:30PM and headed home.
Ugh. I took a cute picture of Kayla and Sadie, but my computer is being picky and is not reading my camera card. I guess I will have to add it later. By the way, Sadie is so sweet and does so well while we are there. She sleeps most of the time. Today, though, she did blow out her diaper. Nice.
Tonight I have been unsuccessful at getting Kayla to take zofran. She promised me that she would take it in the middle of the night if she wakes up throwing up. Sure. . . let the battle begin.
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