Kayla's appointment was earlier today than it has been in awhile, so we needed to leave by 7:45AM (of course it was 8AM before we actually left). Benson was still sleeping, so I left him and Nathan home for Bryson to get to friends' houses closer to 9AM.
We got to the clinic, checked in, accessed and met with Marnie. Kayla's exam was great. Marnie even commented that Kayla is always so boring to examine--which is WONDERFUL. She is staying strong til the end. We see other children at the clinic who are bald, skinny, and sickly looking. It is so sad, but it makes me feel so grateful and blessed for how amazing Kayla has done. After going through chemo for the past 15 months, you can't tell by looking at her. Her face is paler than normal, but that is it.
When we finally got Kayla's counts back, platelets were 90 (which once she has started a cycle they just need to be above 50) and neutrophils were just over 1000 (which need to stay above 500). So, we were good to go for the day. Hooray!
The girls had some fun today in the chemo suite. They played music with Miss Irene. . . even Sadie joined in. :)
The girls watched a couple movies . . .
Sadie took a nap. . . for part of the time. She is a turning into a very squirmy baby now that she scoot/crawls around everywhere. It's kind of hard to keep her busy while we are here all day.
The girls watched a couple movies . . .
Sadie took a nap. . . for part of the time. She is a turning into a very squirmy baby now that she scoot/crawls around everywhere. It's kind of hard to keep her busy while we are here all day.
And we played some Candyland, Sequence, Jr., and I Spy. I thought we would get home earlier since we got started earlier, but it was still 4pm before we got home. I was pretty worn out and am so glad to have wonderful friends and visiting teachers who STILL bring us dinner each week when we go in.
I don't know you but checked your self reliance blog a lot back a year or so ago when you were posting :) and have followed your daughters story. I thought it very interesting you mentioning how well your daughter is doing compared to other children. I don't mean to stereotype, but from what I know of you, you have been filling her body with very nutritional items from the time she was born and haven't allowed harmful things to get in. Her body is so much stronger than other children who eat things from a box or eat out often. I know also it is a blessing and it isn't all of the equation, but just wanted to remind you that you are doing a great job!
ReplyDeleteThank you so much for your comment. :) We are doing our best and have cut out a lot of bad stuff over the years. I will try to continue to post on my other blog. . . I have intended to do more, but life gets crazy sometimes. :)
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