Pentamidine

Tuesday, I had to take Kayla into the clinic so she could get a dose of Pentamidine through her IV.  Pentamidine is the antibiotic that she gets to prevent pneumonia since she still refuses to take one orally.  Since the antibiotic and zofran don't mix well, they had us come in on a different day to get it.

Since it was Tuesday, Lily didn't have school.  So, she wanted to come with us (I don't really want to take Benson at the busy 2 year-old stage that he is at right now--so he went to another friend's).  Nathan and Lily have both really wanted to come and see what our trips are like, so I thought this would be a good trial run since it would be a short day.

Kayla did awesome with everything, sleepy cream, accessing her port, and afterwards the de-accessing.  Hardly a whimper about anything.  I did notice a shocked look on Lily's face when they stuck the needle in Kayla's port and when they took it out.  I think it was good for Lily to see a little of what Kayla goes through. . . especially when people are often giving Kayla gifts and she gets a prize out of the treasure tower each week.

Once we got into the chemo suite, there was another little girl in our usual spot.  So we sat at the little table and chairs and joined in on some music and games with this little girl and Miss Stephanie, the music therapist.  Lily had a great time playing the instruments and games.  Kayla was pretty shy for most of it - I am sure it was because there was another little girl there that she didn't know.

The Pentamidine took about an hour and then we were good to go.  Lily wanted to stay longer and play. :)  But, we packed up and headed home.  All in all, we were gone from home about 3 1/2 hours.