Tuesday, April 23, 2013

April 23rd - Week 49!

Well, I had a close one this week.  I couldn't find anyone to watch Benson, so by late last night I figured I'd just take him with us.  I've done it before, but it does make things more difficult.  But I am getting a little weary of asking people to watch him all day every week.  Thankfully, another friend in my ward texted me at around 9:30PM asking if I had found anyone to watch him and that she could.  THANK YOU!

So, this morning, we got all ready, dropped Benson off and headed to Boise.  Kayla got checked in - and she even let the nurse get her height . . . with a mark on the wall, not with the actual handy simple device they have to measure it.  But, she did it very easily.  I do still hold her while she gets weighed. . . just in case you were wondering.  Ha ha.

While Kayla was getting accessed, nurse Heather told me again how happy she was to see Kayla's results and that she had told some of the other nurses.  This Thursday is the Brain Tumor Conference, so I am very anxious to hear what they discuss about Kayla's case next week when go back in.

Today we met with Dr. Camillo . . not my favorite, but he is nice.  I told him how Kayla had been doing and about her MRI.  I think he looked up the results while we were in there and he was very surprised and happy at them.  He said that is very uncommon for a tumor to go completely away.

In the chemo suite, we were pretty low key.  We watched Mulan and Tangled.  I was tired and didn't feel like trying to do other activities with Kayla, and she was pretty quiet, too.  We did to the games on her lunch tray place mat, though.  The time went by fairly quickly, because they hooked up Kayla's fluids as soon as they accessed her.  That always saves a bunch of time.  I was surprised they did that though, because today was the first day of her next 6 week cycle (second to last!)  and chemo depended on her blood counts.  I forgot to mention that earlier, but her platelets were 120 and her neutrophils were 2370.  Yay!  This was the first time in awhile that she has made counts the first time when starting a new cycle.  It would be so nice to get through these last 12 weeks with no delays. . . knock on wood.

We did take a bathroom and walk around the hallway break and ran into Dr. Hansen and Dr. Camillo.  Dr. Camillo pointed at Kayla and said to Dr. Hansen, "Complete Response."  I took that to mean, "Treatment worked and there is no tumor left."  Dr. Hansen was surprised and happy, too.  He hadn't seen the results of the MRI yet.  He said that he had never seen that happen before!  We get to meet with him next week when we come in.  That will be great because we can talk about the Brain Tumor Conference and I can ask him what this means about the future for Kayla.  Lots of blessings coming our way!

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