Saturday, April 13, 2013

MRI #5

Just to update you from my last post. . . Kayla slept well that night, but still wasn't feeling good Thursday morning.  She didn't have a fever, though.  But, her head and stomach still hurt.  She took a bath and afterwards, ran in and threw up.  I was getting kind of worried by then and decided to call the clinic.

I told the nurse how Kayla had been the day before and that morning.  She told me to watch her for the day and check back in if things got worse.  Okay.  I guess I was okay with that.  Well, actually, I was a little disappointed.  I wanted to go in and have a nurse or doctor check Kayla out and tell me that she was fine, or not fine.  But, I figured I could wait and see how she did.

Very soon after I called, Kayla perked up and was running and playing around the house.  Yay!  She was fine for the rest of the day.  Well, that was a relief!

So, Friday morning, Kayla woke up, got all dressed up (in a skirt, shirt and sweater) and kept asking me if it was time to go.  Well.....we didn't need to leave until 11:30AM and she couldn't have anything to eat until after the MRI, which was scheduled for 2PM.  Ugh, poor girl.  She could have clear liquids until 11AM, though.  So, after she found a rogue juice box in the pantry, she felt pretty satisfied.  Kayla insisted having her hair all curled , too.  :)  So, we took our time getting ready. . . trying to pass the time.  She made her own lunch to take with her and eat after she woke up from the MRI.

When we were all packed up and ready to go, we took off, dropped Benson off at a friend's house and headed to Boise.  Just as I got going I realized that my tank was on empty.  That is a very shameful thing in my family. . . sorry, dad.  We always gas up with the tank is on half.  But, after so many trips to Boise, I just didn't get it filled.  So, then I also realize that I didn't have my wallet.  Ugh.  We were going to be on time.  Bryson was working at home, though, so I called him and he grabbed my wallet and met us at the gas station.  Sometimes I think things like that happen just to make these posts a little more interesting. Ha ha.

Once we gassed up, it was 11:50AM.  Great, I hate being late.  We were supposed to be at the clinic at noon to get Kayla's port accessed.  I figured we be okay, though, as long as we made it to hospital on time--at 12:45PM.

When we got there, I grabbed the stroller out of the trunk for Sadie and we hurried inside.  Kayla got accessed, no problem and we got to say hi to everyone, since it had been a whole three days since we saw them. ;)  I did have a thought after our visit on Tuesday about Kayla getting Pentamadine, though.  I thought she was close to being due for it and with next week being an off week, it would be great timing to have her
get that.  So I got it all worked out and scheduled with Dana and the nurse for next Wednesday, since we will be in Boise already to see Dr. Lee.  It will be a busy day. :)

Next we headed over to the hospital and got there right at 12:45PM.  We got registered and they took us right back to MRI check-in.  We ended up waiting in there for at least 20 minutes until the nurse came and took us back to the prep room.  He was a very nice nurse and spent a lot of time smiling and playing with Sadie. :)  She is quite the charmer.  Anyway, he asked questions, gave Kayla a gown, and helped her decorate a gas mask.  She would be put to sleep through her port, but once she was asleep, they would use the mask.  So, she chose chocolate flavored chapstick to put inside to make it smell good and put princess stickers on the outside.

We met with the anesthesiologist and he, too, was quite taken with Sadie.  Kayla seemed good to go with everything.  The child life person, Taylor came in to say hi, too. We have seen her each time we have come.
So, now all we did was wait for a little longer.    Everyone there was always asking if we had any questions, or if she was okay with everything that would be going on and Kayla was just raring to go.  She kept asking me if it was time yet.  She was very anxious to eat, but she never once complained.  Her MRI didn't get started until almost 2:30PM.

I normally walk Kayla to the door of the MRI room and then watch until she is asleep, but this time a nurse took me away once she was in the room.  I was a little torn.  I wanted to stay there so she could see me until she fell asleep.  I probably should have insisted, but I followed him out and waited for transport to take me and Sadie down to the waiting room.

Sadie slept for most of the MRI, which was nice.  I just ate lunch and read my book.  Once Sadie woke up, I changed her diaper and then they were ready to take us back to Pediatric Recovery.  The MRI lasted about an hour and a half.

Kayla was still asleep when we got back there, so I fed Sadie while we waited.  Kayla woke up fairly quickly and was ready for a red popcicle.  After that, she wanted her sandwich and chocolate chips that she packed.  Once her stomach was satisfied, she let the nurse de-access her port and she got dressed and we were ready to go.

As we got out to the van, I noticed that I had left the trunk wide open.  Whoops!  I was in such a hurry when we got there that I totally didn't even notice.  I was glad that that time we didn't park at the bottom of the parking garage, but we were on top out in the open.  Nothing was missing.  There wasn't really anything to take except a bunch of carseats. ;)  So, that was nice.  I still was in shock that I had done that.  Oh, well.

Now we wait for results!   Thank you for all of your prayers!

3 comments:

  1. i happened across your site while looking for recipes for ranch dressing :) I will be praying for your family and your sweet kayla!

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  2. My sister sent me the link to your blog. We live in Las Vegas and have a kido with an optic tumor too. My daughter Avery is 10 though. We have two doses of chemo left! I would love to compare notes about how you are handling all this!! My blog is www.thepowers-thatbe.blogspot.com my email is sdriscoll18@yahoo.com
    Prays from us coming your way!
    Stephanie and Avery Driscoll

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