Busy Day, and GREAT News!

Last Wednesday was a very full and busy day.   We started out getting up and ready quickly so we could go out to the school and get Kayla all registered for Kindergarten.  It went pretty quickly since I had the paperwork all filled out already.  We met with the bus guy and then in to talk to the Kindergarten teachers.  I told the teacher a little about Kayla's condition and the biggest thing we do is hand washing.  She will (hopefully) have a good month and a half off of chemo when school starts, so her immune system will be building back up.  The teacher was very nice and I know that she will be aware of Kayla as much as she can.

Next we went in to meet with the nurse.   I had a longer talk with her.  She was interested in Kayla's situation and diagnosis and more of the details.  The nurse said that in her twenty years of being a school nurse, she had seen two optic gliomas.  When I told her that Kayla had been getting chemo for over a year now, she was amazed with how great she looked.  We talked about sending a letter out to the kids in Kayla's class that talked about if they had any strange illnesses to stay home or make us aware or something.  Anyway, she was super nice and gave me her personal cell phone number.  She wants me to call her before school starts to give her an update on how Kayla is doing.

Once we were done with that, we hurried home (where I had left Benson and Sadie with Bryson, thankfully) grabbed the other two, dropped Benson off at a friend's house and headed to Boise to an appointment with Dr. Lee, Kayla's ophthalmologist.

Kayla did great whispering the letters into my ear that she saw on the screen.  Dr. Lee told me that her eyes are still very stable.  Good. :)  Her right eye is 20/20 still and her left eye is still very bad.  She could see when the nurse held up two fingers right in front of her face.

I asked Dr. Lee if she had seen Kayla's MRI results yet.  I knew she would get them and we hadn't been to the clinic yet.  So, she looked them up and found them.  She told me I was going to like them.  After she read them out loud, I had to clarify what I had just heard.  There was no tumor detected in her head at all.  Nothing left.  At all.  YAHOOOOO!!  I was in shock for a little while and had a few tears slip out of my eyes.

Right after that appointment, we hurried over to the clinic.  Kayla was getting Pentamidine.  I had called Bryson and told him the good news and while we were in the lobby waiting to get checked in it hit me a little harder and I couldn't stop crying.  I cried while she got checked in and then finally composed myself, and shared the great news on Facebook. :)

While nurse Heather was accessing Kayla's port I asked her if she had seen the MRI results.  She hadn't so I shared the good news with her.  She was shocked and very excited for us.

The visit went well, we chilled, watched Mulan and ate some snacks.  It was a busy day there, so I didn't have a chance to tell many people, but I did tell Penny in the chemo suite and she gave me a big hug.

We have been so incredibly blessed this year.  It hasn't been a walk in the park by any means, but I know that it could have been so much harder and so much worse.  Thank you all for your prayers!!